Partners
BARE Inc. Is the only organization dedicated solely to educating the public about and funding research for Biliary Atresia - the leading cause of liver disease/liver transplant in infants and children.
Research & Education
Where others see unmet need solely as a treatment gap, Mirum envisions a unique opportunity to revitalize a community like never before. Their need to develop transformative medicine is propelled by their passion for patients and their loved ones, and they are focused on turning possibilities into realities.
Research
CareAline's mission is to help patients live safely and fully by providing clinically proven vascular access securement devices to hospitals and patients. Their goal is to increase safety, comfort, and quality of life for patients in the hospital and at home.
When purchasing a CareAline product, use the code LMF for 10% off and they will donate $2 to Liver Mommas.
Care
The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support.
Fundraising - Support
Colleen's BA 5K and 1 Mile Fun Run/Walk was established in memory of Colleen Mitchel, who was born in 1993 with biliary atresia (BA - the most serious liver disease of infancy and childhood) and died in 2013 at 19 years old, while awaiting another liver transplant. Proceeds from the event will support biliary atresia research at the Johns Hopkins Pediatric Liver Center in Baltimore, MD and organ donation awareness.
Fund Raising - Research
Help Hope Live is a nonprofit that supports community-based fundraising for people with unmet medical and related expenses due to organ and cell transplants or catastrophic injuries and illnesses.
Fundraising - Support
Northwest Kidney Kids provides youth and family camps, regional activities for families to connect, and supports clinics in treating children with chronic kidney disease. They also award Suzanne Billings Memorial Scholarship annually.
Partnership
Advocacy
PFEP is the Patient, Family and Engaged Partners of SPLIT. We provide pediatric transplant families hope through resources, support and advocacy. It is our mission to help bridge the gap between patients, families, doctors, and the community to help improve the outcome of pediatric liver transplantation.
Transplant Families provides families of pediatric transplant information about existing support groups and web pages that might help them during, before and after the transplant procedure.
Networking
UPMC and Donate Life America partnership to raise awareness of living donation and create a community where people can find information and connect.
Awareness